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Monday, June 9, 2008

Oops! Forgot to mention....

I almost forgot to mention that we were able to get some help with Logan's diapers and wipes this year. I had to fill out paperwork last year to get him on the list for the Agency for Persons with Disabilities. Of course, the list is huge and with budget cuts I'm not sure if he'll ever get help with the speech and occupational therapies but I got the information and was able to get him on the list. I've heard some horror stories about how long the list is and how long it takes to get approved; not to mention all the new cuts in the budget.

When I spoke to his case worker last year she said to call her again this year around the end of May beginning of June to see about help with diapers and wipes. I did call and thankfully they did have a little money so we were approved for some help for him! Yeah, we will be getting diapers and wipes delivered to the house monthly until the money is gone. I told her I was thankfull for any help we could get for him. It's going to be nice having that little bit of extra money that we spend on Logan's diapers each week and wipes. We will put it towards all of Ryan's baby food and formula. Every little bit helps so if you know of someone who needs help tell them to check out the Agency for Persons with Disabilities website. You have to have a definite diagnosis and I'm not sure which they are able to help with but if you type in the name of the agency you can find it for your state. I will try to get the site for Florida up on the sidebar for anyone who needs it. Just take a look around and then give them a call. They were really good about giving me a call back anytime I called with questions. Everyone I dealt with was very nice and always seemed ready to help.

Wow, it's been awhile!

I didn't realize how long it's been since I updated this blog but it's been kind of busy so I will try to update as much as I can with the one post.

Let's see, we knew in April that Logan wouldn't attend summer school this year because his aide couldn't work and the other aide wasn't able to get her notice in on time. I can't say I blame either one; poor things need a break from all the kids and work they do. They work so hard and are underpaid so they need their summer break even more than the rest!

We found out right after Logan's IEP that his aide, Ann wouldn't be going up to kindergarten with him next year. It was very sad but I totally understand where she's coming from. When you find the right work environment and it really clicks you hate to walk away from it. It's very rare that you can work with people you actually like and respect (as people let alone fellow employees) so you can't walk away from that easily. Logan did need to break away before he became too attached so again, I understand all the thinking behind the decision but I do admit it's hard for Mommy to let go. I had to put in my choice for his new aide for next year and I had two very qualified people to give names for so I'm happy as long as I get one of those two.

Logan did act up the last couple of weeks of school; smacking, scratching and just being very vocal and upset about things. He's calmed somewhat in the few days since school let out and it helped that Ann and Charlie came over to babysit this weekend. He was standing at the door looking out the window watching for them to arrive. I believe he'd been standing there for about 20 minutes by the time they got here. He was so happy to see Ann especially. He kept smiling and saying her name over and over. He loves them both but usually will gravitate toward Charlie because he doesn't get to see him as much. All the kids love them so we've adopted them as part of the family. It sure doesn't hurt that they like to watch the kids for us so we can have a night out once in a while!!

Logan will be in one of the three Autistic kindergarten classes next year. I believe I heard this correctly, they are moving all the kids to the school he is going to so they are having to add two more classes. I was able to meet the teacher who will be in charge and hopefully Logan will be in her classroom. She seems to really know her stuff and is really into working on speech in their daily routine. I've seen her at the school for a couple of years just didn't know who she was and I've noticed she is really good with the kids. She was the one to bring the kids out to the parents at the end of the day and always took a minute or two to discuss how they were that day. Each child seemed really relaxed and seemed to really like her too so that's a plus. Now, if he can just be in her class, right?!?!?!?!!!

Ryan is improving; just not too fast with the food issues. We were going along really well and had to stop because of the stomach bug that went around. I was having to sit with Logan for a week while he fought that stupid bug so I didn't want my hands anywhere near Ryan. I know I was being overly paranoid but I just didn't want to even think about it. I washed my hands everytime I went near Logan. My hands were raw, cracked and bleeding by the time his bug was half way gone and continued to stay that way for about a week later. I think I did a ton of laundry that week not to mention all the scrubbing and cleaning. Thankfully, the only thing the other kids got from that bug was the diarrhea but that was enough believe you me!! I never want to have another bug like that come in this house ever again!!!

Ryan is talking more; too much sometimes as he tends to say everything that everyone around him is saying. It's now I need a baabaa or I need Nanas or I need to snuggle. I've been working on I want with him and Logan and will continue to do so this summer. I was supposed to get a book that the speech therapist at school at been working with Logan on but that never materialized so now I have to just go with the notes I made at the IEP. I should do fine with my notes and what we already do but it sure would have been easier if I'd remember to nudge the speech therapist for the book before school let out. Another I'm not happy with myself moment but I will survive. He's getting better with his dexterity in his fingers; we've been working on putting some cute little bears on a shoelace. I found that at Staples thanks to his OT; she told me to check there and sure enough I found a pack. We worked on that yesterday with him for a little while and then Katie tried her hand at it. She loves to do whatever he does and vice versa. We noticed that they both would get the bears on the lace facing the same way. I would try to hand the bears to them facing backwards or upside down but they both would catch that and put them on the same way everytime.

Is it just me or has anyone else noticed all the information about Autism really popping up lately? More commercials, more advertising at professional sports and then of course the not-so-lovely reports that come out about